Supporting People in North Staffordshire with Autistic Spectrum Conditions

What is ADHD?

ADHD (Attention Deficit hyperactivity Disorder) is a neurological condition which affects an individuals behaviours including impairments to: concentration, memory recall, hyperactivity, attention and impulsivity.

There are 3 types of ADHD; Inattentive, Hyperactive and also a combined type.

ADHD affects both males and females, although currently the ratio of males to females is around 3:1 but in recent times, diagnosis of females has risen due to more awareness of the condition.

Decades ago, ADHD was seen as a condition that affected only young boys and that children would grow out of when they reach adolescence. Research has taken place over recent years, to show the preconceived perception of a childhood condition is no longer the case and it is now known that ADHD is a condition that occurs throughout childhood and adulthood.

The main methods of treatment for the condition is medication, therapy, behavioural management and CBT. Although this is a condition that can not be cured, a combination of medication and therapy can help an individual to manage the condition.

Assessments are carried out by psychiatrists/psychologists specialising in ADHD, giving a diagnosis of the type of ADHD that the individual has. A treatment plan is then created depending on the individual, their medical history and their type of ADHD. Medication comes in the types of stimulants and non-stimulants and are prescribed based on the type of ADHD and the potential side effects that may occur. There are non -prescription medications that research has shown may help individuals with ADHD (see Tools tab).

The ADHD brain is different to that of a non ADHD brain as the neurotransmitters that allow the brain to send signals are not accepted by the receptors in the brain (think of a claw machine trying to pick up toys, but the claw doesn’t open). Therefore, struggling to naturally absorb dopamine and other chemicals within the brain. As the brain does not take in the dopamine, there then becomes a lack of it in a person with ADHD thus then “dopamine seeking” to try and gain some of the reaction in the body that it is missing. Dopamine is typically associated with feelings of happiness and excitement. However, the impairment of being unable to retain dopamine in an ADHD individual have effects on: the working memory, impulsivity, hyperactivity and stress.

Throughout the website you can find more information on the condition including

  • Where to find help and information online?
  • Recommend books/podcast/social media pages
  • Coping tools
  • Help and support for teachers
  • Online courses
  • How do traits differ in boys and girls?
  • What co-occurring conditions occur with ADHD?
  • Traits that you may not be aware of.

Video

This is a video from The Mini ADHD Coach (pages on Instagram and Facebook)
What Is ADHD? Finally Understand Attention Deficit Hyperactivity Disorder 🙌 - YouTube

https://www.youtube.com/watch?v=TM7jwfRZlj0

Traits of ADHD

ADHD can display differently in each individual. Individuals may be: inattentive, hyperactive or a combination of both. Although the condition contains “deficient in hyperactivity” this is not always the case for every individual and some traits will fall outside of what people have perceived as the “typical ADHD traits” being:

  • Inability to concentrate on a task – an individual may become physically restless during a task, getting up, starting something else or may start to day dream.
  • Hyperactivity -  individuals may struggle to sit still whether that be: at a desk, school, work or watching a film. They may find they tap the desk, swing legs, sit on the feet or trace shapes (this is called stimming).
  • Impulsivity – individuals may be seen to not think things through before making a decision, they may like to do things off  plan or spur of the moment. They may become impulsive with money, alcohol, food, drugs see co-occurring conditions) and decision making. This can lead to issues with the law and addiction.

Quite the opposite of the stereotypical traits can occur in individuals, with very little awareness of other traits currently failing to exist.  Below is a list of some of the lesser known ADHD traits, that may help people to identify some traits that they may have always exhibited but never been made aware that these in fact are traits of ADHD

Task Paralysis

 

When it comes to hyperactivity an individual may struggle to get started with task paralysis.

They may leave things until the very last minute (procrastination) and may struggle to organise tasks they need  to carry out.

Justice sensitivity

 

This is when an individual may feel a strong sense of injustice in a situation and may take it upon themselves (no matter how big or tough the situation is) to resolve the matter and to right the wrong.

 

Hyperfocus

 

Individuals may find that they have bouts of hyperactivity,      being able to hyperfocus on a certain task, then meaning that they are unable to stop until that task is complete.

That could mean they spend hours fixating on learning anew skills, buying items required, failing to eat or to go to the toilet, miss appointments or essential daily tasks until the task is done.

They may then fail to have any interest in that subject what so ever after the task is done due to burn out.

Hyper fixation is not a trait that ca be turned on or off, so is usually seen is being quite an inconvenient trait.

 

Image from www.modernmindmasters.com 

Rejection Sensitivity disorder (RSD)

This is a trait that can be very debilitating for individual with ADHD. This trait can mean that a person gets incredibly upset or hurt if they have interpreted something that someone has said or a way they have reacted and interpret it as a negative response. It usually is not the case that an individual has actually rejected the individual with ADHD, but the RSD can make a person feel like every comments is aimed towards them. This can lead to individuals playing out conversation and every possible outcome before they have happened. Once a conversation is had they will replay the conversation, regretting things they have said, analysing what was said and trying to interpret another persons thoughts and feelings.

Oppositional Defiance Disorder (ODD)

 

This is a trait whereby someone may automatically disagree with a point that has been made, regardless of whether or not they know that their point is neither valid nor correct. But will then be unable to back track and agree that what they have said is incorrect. Individuals are often interpreted with this trait as “difficult and argumentative”. Because a person with ADHD  stress levels can be in a constant heightened state, due to the impact of ADHD on the nervous system, individuals can be short tempered and incredibly reactive. Both with words and physically. They may hit out when instantly reacting in a situation or may “blow up like a botte of pop” losing their temper and struggle to see the situation from another’s point of view. This may continue until they have given themselves sufficient time and space from the situation that has triggered them. 

How to spot ADHD

  • Shaking/ tapping legs, tracing shapes with fingers, tapping fingers, rocking back and forth, humming and making noises (stimming)
  • Constant needs to have noise – talking to self, singing, having the radio, being on the phone to someone when alone
  • Speaking loudly and fast
  • Getting very excited and passionate about things (cant be interpreted as talking aggressively)
  • Once an idea is in your head, you cant get it out until you get/achieve it
  • Pacing whilst on the phone
  • Sits with legs pulled up, crossed legs on chair, need for pressure on legs
  • Extra joint mobility (hypermobility) can flip elbows round, very flexible
  • Constantly reeling off a list of things you have done or need to do
  • Oversharing information (if someone asks you divulged too much information then instantly regret it after)
  • Are awake late at night doing random things (decoration/ making bread/ searching new hyper focus)
  • Have had a whole list or hobbies and interests that yu know have o interest in what so ever
  • Have had numerous jobs as you get bored are sure you are ongoing to get fired so lave
  • Have money issues due to money management or spend impulsively
  • Get overwhelmed if too much is going on around you (if people take whilst you are trying to talk/think)
  • Being around people mentally drains you
  • Struggle emotionally – gets upset/cry at the smallest of things or snap and get angry really quickly
  • Get irritated by the littlest of things – sounds of a person breathing or eating
  • Constantly needing a distraction – wondering around at work, half finishing jobs, eating snacks due to boredom
  • Cutting people off in a conversation
  • Forgetting what you are saying part way through a sentence
  • No filter/ just saying things to provoke a reaction

Co-occurring Conditions

ADHD is though to have an ever evolving list of medical conditions that run alongside it. Research has found that due to the amount of stress on the nervous system due the ADHD, that this leads to other medical issues occurring. However, the 2 most common conditions that tend to occur with ADHD are anxiety and depression. This is why a large amount of individuals undiagnosed with the condition, as they are misdiagnosed with anxiety and/or depression. These co-occurring conditions can include:

  • Hypermobility (flexible joint/joints dislocating/ double jointed)
  • Thyroid issues
  • Acid reflux
  • Digestive issues
  • Other learning difficulties that can occur have been listed as:
  • Tourette’s/tics
  • Dyslexia – issues with reading, writing and spelling, and working memory
  • Dyspraxia – poor hand eye co-ordination, leading to falling, tripping, balance issues and grip
  • Dyscalculia – struggles with dealing with numbers and mathematical issues
  • Sleep issues - falling asleep or staying asleep
  • Sensory issues including :

touch (clothing, seating, bedding)
smells (strong smells or struggle to smell)
textures and taste (food)
light (bright lights)
sounds (overwhelmed by too much noise or need for noise in order to function)

Co-morbidities

A comorbidity is when an individual has both a mental health condition along with a substance/addiction issue.  Individuals with ADHD not only tend to have other medical conditions that occur alongside it but also have substance and addiction problems that are caused due to ADHD issues. Such as problems with drugs (both prescription and non-prescription) and alcohol dependency.

Some traits noted in the traits section includes Oppositional Defiance Disorder (ODD) and justice sensitivity. This along with authoritarian issues and lack of natural dopamine absorption can be that one of the greater known impacts of an individual having ADHD can be that they can end up leading to a life of entangled with crime, that over time leads to prison sentences.

The amount of individuals with ADHD in prisons is still uncertain but has been thought at times to be up to around 60%, as those with ADHD are 2 to 3 times more likely to get into trouble with the law. With individuals seeking dopamine meaning they may have a tendency to: turn to drugs, consume excessive alcohol and break the law. The effects of oppositional defiance can lead to issues with the police and authority.

In the book “how not to murder your ADHD child” the author explains how when she worked in prisons, the impact that an ADHD diagnosis, along with treatment and medication can help to turn around the lives of ADHD criminals.

 

Tools 

There are many different methods and tools that can be implemented, in order to help an individual with ADHD. Whether diagnosed, undiagnosed, medicated or unmedicated there are different tools that can be accessed to cater for the needs of those with the condition.

Upon diagnosis an individual will be offered medication. There are also therapies and coaching that can be accessed to help give a person with ADHD the mental support that they need to help them to manage their condition and the traits that affect them most.

Individuals need to assess what their triggers are, in order for them to be able to gain the best type of support and to create their own toolbox.

Local ADHD coaches/ counsellors and therapists are available in most areas. These tend to be at a cost but in some areas, the NHS may have local services that they offer (check with your local GP).

There will also be online help from professionals that can be accessed through online searches and forums/groups for individuals just wanting to reach out to those with similar experiences. Some of these can be found on the online help tab.

Individuals may find that understanding the condition better helps them to internally separate out what is an ADHD trait and what is not. Therefore, being able to give themselves some compassion when it comes to traits they find they have no control over. Reading books, listening to podcasts, online forums and courses are all different ways of informing a person on ADHD and its traits (see other tabs for more information on these).

Physical items:

  • Weighted blankets (may help with anxiety and sleep)
  • Soft bedding/blankets like silk or teddy bear material
  • Fidgets rings (help with restlessness and anxiety in social situations)
  • Foot rest to give pressure on legs (may help with restlessness)
  • Head/earphones to avoid any sort of distractions. Brown noise (thunder and rain sounds) and red noise (said to help with concentration) are said to be helpful
  • Fidget toys (help with concentration or anxiety)
  • Square of favourite material in pocket (whether this be for touch or smell, like a piece of silk to stroke or with your favourite smell on)

 

Activities/apps/organisation help:

  • Exercise – this helps the body to release the dopamine that it would normally struggle to and to increase endorphins
  • Outdoors – this helps to give a sense of calm, reduces stress and allows us you to be in your own mind, processing and facing those thoughts that we may have been avoiding
  • Tablet organiser with days of the weeks on – to ensure medication is not forgot/to avoid double dosing
  • Sticky note app on phone – to keep vital notes or to track bills
  • Alarms - as a reminder for medication, upcoming appointments, daily tasks
  • Body doubling - working with someone else to remind you and motivated you (see online forums)
  • Put things into a planner - to avoid talking yourself out of doing something maybe due to RSD or anxiety
  • Lists – this can work both ways. Some its helps to organise, some it adds pressure you need to analyse how this makes you feel when you write a list. Do you feel a sense of calm or do you feel anxious and overwhelmed if you don’t achieve everything on them.

Self Care

THIS IS ESSENTIAL FOR THOSE WITH ADHD! Out of all of the tools, this is the most important one. ADHD can make an individual run like a motor. Never stopping, never taking time for themselves, running into burnout, making themselves poorly, high anxiety levels and running down their immune system. You must make time or allocate a set time each week/ every 2 weeks for yourself.  Whether that be a walk on your own, time to sit and journal, time to dance to your favourite music in the kitchen, to take yourself out for coffee and cake or to go to the gym.

Allowing yourself to be in your own mind, with your own thoughts is something that rarely happens in those with ADHD. Giving yourself that time to run through the past week/day/month, notice things/ situations that may have triggered you and how to avoid that in the future. To acknowledge how something has made you feel and if there is something that you can do to change it. Are there ways you could have reacted, situations you have found yourself in and realised these have occurred because of ADHD traits. Then give yourself come compassion in knowing that you couldn’t have done anything to change that. That sometimes it’s the ADHD in the mind that has reacted that way, made that decision, said something you didn’t like and forgive yourself for it.

Because sometimes the biggest burden and impact of ADHD is the way the individuals beat themselves up about things that they just have no control over.

Supplements

There has been a lot of research into different nutrients and supplements that can have a positive effect on some of the brains functions. Below is a list of different supplements, that research has suggested can help with those areas of the brain the are mostly affected by ADHD:

  • Omega 3,6 and 9 these - help to improve concentration
  • CoQ10 - this helps with hyperactivity
  • Mushroom complex - these can enhance brain function
  • Zinc - to help impulsivity
  • Magnesium - to help emotional stability
  • Kombucha - gut health is thought to have a big effect on ADHD symptoms and kombucha is seen to help improve this

Additudes (online resource) information on supplements and vitamins that can help can be found on this link

Additudes

Resources 

Books 

Dirty laundry  - https://amzn.eu/d/g4eW0lB

How not to murder you ADHD child - https://amzn.eu/d/giuzFAj

Step by Step Help for ADHD children - https://amzn.eu/d/dAMdMRk 

 

Podcasts

Below are a few podcast that have good reviews (mainly female related) but there are many more relating to parenting, professionals and males on Spotify and Apple podcasts:

ADHD AF (as females)The ADHD unfiltered podcastADHD babesThe ADHD adults podcast 

Tv Programmes 

 

Chris Packham (on Autism)

Christine Mcguiness (Autism)

Instagram and Facebook

Adhd Staffordshire support,  Pegis (closed group),

Adhd foundation,  Adhd_untangled,

The.neurodivergentcollective,

The_mini_adhd_coach,

ADHD UK,    Additude

Online 

Online information regarding ADHD events, webinars, video, forums and much more comes in a great variety now meaning that whatever type of information you require, is accessible at all times. This can mean opening opportunities to meet other with the condition at support group, attending events intended to inform and welcome those with ADHD. Accessing webinars that give help, support and information on ADHD as a whole or specifically on certain traits.

 

Eventbrite - continually have events running all over the country and online, happening through out the year

City of Stoke-on-Trent, United Kingdom Adhd Events | Eventbrite

 

ADHD Foundationeverything you could need regarding information on ADHD. From information for parents and children, for teachers and professionals, current research and findings, to information on the conferences that they run

https://www.adhdfoundation.org.uk/

 

Ted talks  - these are videos/recording from professional speakers on all topics including mental hep and specifically ADHD.

Jessica McCabe: This is what it's really like to live with ADHD | TED Talk

 

ADDitudethis is an online magazine and information point aimed at people with ADHD and for those who work with individuals with ADHD . This is great as all articles are current and updated as research is being carried out.

ADDitude - ADD & ADHD Symptom Tests, Signs, Treatment, Support (additudemag.com)

 

Other useful sites include:

https://www.mind.org.uk/information-support/tips-for-everyday-living/adhd-and-mental-health/

https://www.youngminds.org.uk/young-person/mental-health-conditions/adhd-and-mental-health

Courses 

Available online (link below) is an example of training ran by the NHS for information on ADHD to their professionals.  This is a great resource to give a brief overview of the condition and hep other to understand how it affects individuals with ADHD.

https://www.england.nhs.uk/north-west/wp-content/uploads/sites/48/2019/03/Training-for-specialist-ADHD-teams.pdf 

 

Open University 

This is a free online course. That requires no questions to be answered, is more of an informative course and loos into a neurodevelopmental and impact side of the condition.

Understanding ADHD - OpenLearn - Open University

 

Kings College London – Understanding ADHD course

This one comes higher recommended and I feel is the most up to date of the courses. It looks at both the children and adult sides of the condition, as well as covering both males and females. It looks at current research and how things are progressing when it comes to acknowledging the condition and how the ADHD brain functions.

The information is released on section each week and there is a 4 week deadline. After which the information is not accessible.

Understand ADHD - Online Course | King's College London (futurelearn.com)

Parents / Carers 

Being a parent to a child with ADHD can be an incredibly tough task. Trying to decipher what is ADHD traits and what is not, trying to parent whilst understanding your child’s triggers can be extremely challenging and coping with the physical needs of an ADHD child can be both physically and mentally draining.

ADHD is a genetic disorder and tends to have been inherited from one or both parents. Meaning that an ADHD parent may be parenting an ADHD child, adding more tension and stress to the situation. Parents (as do children) can be triggered by certain noises, words, sounds etc and these can often be produced by the ADHD child. Without the correct support add strategies being put into place, an ADHD household can be an incredibly stressful place to be.

Whilst waiting (or having had failed attempts) at gaining help and support from local children’s services, there are a few other things that parent can try to access and implement whilst waiting for professional support.

  1. The one and most powerful thing that can be implemented is making sure that the parent (whether ADHD or not) is giving themselves to self care. Without having the time and space to and for yourself, you may find that you struggle to deal with your ADHD child. Although spare time with ADHD child (or children) may be almost impossible, it really is vital to ensure your mental health is not impacted too much and that you can give you child the right support. If it is that you are suspecting ADHD in yourself, you can ask under the “RIGHT TO CHOOSE” to gain an ADHD assessment. This may then open up further avenues of support for yourself, so that you have the ability to give your child the support they need.
  2. Education – understanding the condition as much as you can, mean that you better understand your child. You may be able to identify wat is an ADHD trait in them, meaning you are bale to parent that behaviour in a more suitable and effective way and that you may have more compassion that the child has no control over that specific behaviour. Identify what is an ADHD trait and what is just terrible teens/ a sassy child/ a grumpy lazy teen can be hard. But having that understanding eases the burden of parenting a little, allows more empathy for the child within their struggles, may help to avoid triggers and meltdowns and may help you to find methods to self soothe after.
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